Planning ahead when you travel

Traveling when you have cTTP can require some consideration. An important first step is to consider speaking with your care team who will be experienced in advising you of the things to be aware of when traveling, and you may also find the information below useful.

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Traveling to your treatment center

Travel and treatment time can quickly add up, especially if you have to do it on a regular basis, so you will want to make your experience as smooth as you can. Arranging appointments during “off-peak” hours (if possible) can cut down on the journey time or make using public transport a more comfortable experience. Consider taking some form of entertainment with you like a book to read or music to listen to if your treatment center is some distance away.

Although they may not always be able to help, you can ask the center if there is any treatment-related financial assistance they can provide for your trips.

Traveling abroad

Speak with your care team for guidance on any vaccinations you may need when going abroad and to see if your treatment center offers them.
Your care team may test your ADAMTS13 or platelet levels (if available) to find out more about your risk of an acute TTP event.
Discuss with your team, any documents you may need to bring along in order to take your medications with you.
Ensure you know where the treatment centers are at your destination, arrange treatment, and find out how you can get there if needed.
Take any advanced supplies of medication with you.
Choose direct flights, when possible, to help minimize your travel time. You may want to ask about priority boarding too.
Be sure to purchase the correct travel insurance.

Traveling anywhere

Your care team can help you take the right steps and create an action plan ahead of time in case of an emergency when traveling. Things to consider include:

Carrying a letter from your hematologist/doctor explaining your condition, treatments, and emergency contact information.
Adding a “medical ID” to your phone with information about your cTTP diagnosis and your treatment, which can be accessed by a healthcare professional in an emergency.
Having a plan for obtaining emergency plasma infusions or plasma exchange therapy, if needed.
Following specific storage and handling instructions for the medication, including avoiding its exposure to extreme or inappropriate temperatures.
Letting someone know when and where you are going to.

The information provided on this website is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any concerns or questions you may have regarding your medical condition or treatment.