What would you like to find out about congenital thrombotic thrombocytopenic purpura (cTTP)?
I have just been diagnosed with cTTP, what does this mean?
I want to learn more about managing my cTTP diagnosis
I would like guidance on how to cope with cTTP
Did you know that cTTP...
...is one form of a condition called TTP1 TTP
…occurs when there is a deficiency of a specific enzyme called ADAMTS13?1,2 ADAMTS13
…affects around 0.5 to 2 persons per million worldwide?1,2
…diagnosis can be delayed by up to almost 4 years in some cases?3
Patient Stories
In this powerful video, Kim shares her journey of being diagnosed with cTTP and the profound impact it has had on her life. From early struggles to finding strength, her story is one of resilience and hope.
Brightcove Video
The information provided on this website is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any concerns or questions you may have regarding your medical condition or treatment.
References
- Sukumar S, et al. J Clin Med. 2021;10:536.
- Tarasco E, et al. Blood. 2021;137(25):3563–3575.
- Alwan F, et al. Blood. 2019;133(15):1644–1651.